We're here. We arrived last night after a long day of travel.
We were blessed to stay at the Cleveland Guest House. They
gave us a very discounted rate which one person commented that
they "don't typically do" for pediatrics. We slept at the hotel and
then came in the morning to the hospital. It was a chilly day, but
the fresh air was nice. We went to two different neurologist appointments
with very long wait times. I think we were in one office a total of 4 hours.
Needless to say Timmy was such a trooper! He had tremendous patience.
We did not check into the hospital room until about 6:30 p.m. Then came
the wires on his head for the video EEG, and 3 tries to get the IV in.
He was very tired and he did not take well to the
procedures this time. He quickly fell asleep right after. (see picture)
We have many tests that he will be getting tomorrow including labs and
even a spinal tap. Please pray for these as they are done as well as results.
They are very thorough here. They will be checking for a number of things he
has not been tested for before.
We are so glad he has gone a week without seizing, but once again the
timing is not the best. We are hoping if he is going to start a new flurry that
it happens without having to prompt him by adjusting his medicine too quickly.

We are happy to report too that we went from being 6th on the waiting list
to Jim getting a room at the Ronald Mcdonald house! That is such a great
place. Pray for sleep for both of us, I will be here in the room with Tim.
Thanks for reading about our day. We know that you are praying for us and
we are so grateful. I will try to update the blog tomorrow.
Trusting in the Lord,
Stacy