Friday, December 19, 2008

Timmy's favorite Doctor is Doctor Pepper


Wow! Is all I can say... We met with Timmy's Cleveland neurologist today. She took a long time to not only tackle opening the format the past EEG's were done in, but she looked at each seizure, and all of his past records. She came to our room and met with us this afternoon and said the seizures she saw this morning as well as many that she saw on past EEG's had a right temporal lobe focus. She said that the couple that appeared to start on the left in the EEG in August could have started on the right and transfered in a place that would not have picked up on the EEG. What does all this mean you ask?? The surgery option is not a closed door. Not a definite, but what I love about this place is that they are going to have a large group of people in all areas of neorology including neuro-surgeons that will meet and discuss Timmy's epilepsy. I am so blown away at how completely thorough we they are here, and I love the team approach.
The neurologist spent so much time with us today answering question after question after question.
For now, they are hoping for a couple more seizures that are more "typical" meaning what we see on meds at home, that would really help make the case for surgery. She will have the team meeting in Jan. The other neuro doc we met with the first day will also be working on this
from a different angle so to speak. His expertise or focus is on the cause. He is the one who ordered all the labs to look at genetic and or metabolic breakdowns that could be contributors.
He will also be able to add in his piece at the team meeting. All of it will help with where to go from here. If surgery is not ultimately the answer, once they have the whole picture they can put together a plan that will help with the best quality of life he can have.

As far as Timmy goes, he did not seize again after this morning. He did well with his spinal tap as he sang the whole time the mask was on as he drifted off to sleep. The guy is a trooper, had a great attitude and was well rewarded with a whole Dr. Pepper. Who is his dad???? Like father like son.
We will not make it home tomorrow, they need to make sure with less meds that he doesn't flurry. We have changed our tickets to Sunday and that means we can still be back to Tucson by Sun. afternoon, which is sooner than we thought it might be.

Thanks mom, for taking such great care of our kids! It makes being here so much easier.
Thanks to all of you who have prayed for us. We know God is directing our steps.
Thanks to those who have helped us finacially to get here and to help with the bills that will come.
I will try to write an update on Timmy's night in the morning.
signing off for now...

2 comments:

  1. Hey guys! We are following all this and just want you to know we are completely available to come pick you up on Sunday in the truck! NO PROBLEMA! We are just going to be hanging around and would be delighted to come get ya'll! We love you and are praying for you! So exciting to hear how God is working through this amazing team of doctors! AND you got to see our family - that's great! Tell Timmy I can't wait to sing a diddy with him! In Him, Katy

    ReplyDelete
  2. Thanks so much! Barb was our ride if we had come home today and was available Sunday too so we sent her our flight info. Thanks for being willing. It was so fun to see Micheal and Kay their kids are sooo cute! I look forward to seeing you soon.

    ReplyDelete