Hello! We are into the evening here. We had a great meeting with the neurologist here. She is going to look over his past video EEG's tonight. She would really like a third one to compare, and is not ready to "throw in the towel" on surgery yet. I love that they are looking at all of his past tests as well as really wanting to get data of their own. For that reason, they are wanting to remove the last medication to precipitae a seizure. They are hoping to record it soon so that we can put meds back on board to make the flight back safer. To safely pull this off it might require staying longer than Sat. which is really making me sad... but it is why we came to this place.

The other kids are on Christmas break starting tomorrow so I am looking forward to getting home and being with them too!

In order to still make our flight... Timmy would have to have seizures tonight, and they would have to be able to get them under control well before they discharge us, a tall order.
If he does not seize, or the neurologist thinks we may need more time to get his med. level back up, over a couple days we are not going to be back Sat.
We will know better by tomorrow!
He will have another blood draw in the a.m and then a spinal tap at around 11:30. ( He will be sedated for that) not my favorite of all procedures. Pray for me and him
Keep praying for God's will to be done in all of this.
***Fun notes of the day... we are expecting a visit from old friends Kay and Micheal tonight. Timmy opened a fun present Barb sent with him, and Timmy has a great attitude, commenting on how he would like to "live here" ( I think he is getting a little bit of king syndrome.. hee hee)

Kaley, Bradley and Holly if you are reading this tonight
we love you soooo much and can't wait to get home and
make cookies and decorate gingerbread houses! Enjoy your
last day of school before break!