
Thumb's up is how we describe today. Timmy had more blood tests, and they were hoping to get some seizures recorded today after taking him off of one of his 3 meds last night. No seizures.... Strange, we did ask the Dr. about
possible environmental triggers, no connection at this time. Weird though that his biggest breaks have all been when we are on trips. So we decided we are leaving for Hawaii as soon as we get home from Cleveland! Just a joke...
Timmy did great today lots of energy feeling good. We made the best of it and enjoyed the time being with him. They plan to adjust the meds again because the Dr. can't see the origion of the seizures if he is not seizing.So, we will see how tomorrow goes. The dr.'s and nurses have been very nice, we are reading a book about epilepsy written by one of the neurologists on the team here as time permits. Their was a water main break down the road so the whole hospital is using bottled water until they can get it fixed. Adventure is Jim's middle name so no "local disaster" makes him flinch.
Testing continues as do our dialogues with the doctors here. We won't know very much for a while. Most of the tests resuls will take at least 6 weeks.
Thanks for continuing to pray, it is obvious to us!
Good night!
Hi Stacy, Jim and Timmy!!!
ReplyDeleteJulia and I, here! -- our whole family has been in serious prayer for you:) We hope you're doing well and that your time together is restful.
How's your weather? This morning the clouds in Tucson are lifting to reveal an incredible white shawl of snow on the mountain peaks above your house. Alleluia!!!...and just plain,...WOW!!!
We had the joy of having Brad over on Tuesday, albeit briefly! It made Luke's (...and Julia's) day! We also enjoyed seeing Grandma Sandy, the girls and their beautiful nails!
In the meantime, we continue to reflect on our gratefulness to the Lord for you all. HE will work out all of the details for your time with Timmy at the Cleveland Clinic. May it be all to HIS glory!!
Resting in HIS peace,
--Erin (...and Mark, Luke and Julia)