Good Morning! Thanks for checking in on the blog.
Timmy slept pretty well with a blood draw again at 5:00 am
He began to seize around 5:45. I was sleeping next to him and
did not see it because it resembled the one that he had 2 weeks
ago when we called 911. It was very subtle and he was non-responsive.
The seizure lasted about 8 minutes and he was given some emergency meds
to stop it. He then had another one a couple hours later, so we added a
dose of the last med that we took him off of. It will take a little while to
stabilize him at this point, so coming home tomorrow seems like a long
shot. The neurologist will be looking at his past EEG's as well as todays
and doing a comparison to see where in the brain the seizures are coming from. If the
EEG's were clear and easy to read, we should have some more info to
go on by lunch time. In the meantime, he is sleeping soundly.
I will write again as soon as we know better what they have been able to
put together with all the info they have gathered and when we might be
able to head home. It is hard to be away this close to Christmas, but
I know it was the right thing to do to come. Jim and I are both tired so
continue to pray for stamina and peace. The Lord is good, we are
so thankful to be able to be here and have the kind of technology and
care to tackle this complex stuff. We feel so blessed to live in this country and
have this level of care... amazing.